Journal article

Men living with fibromyalgia-type pain : Experiences as patients in the Swedish health care system


No matching items found.

Research Areas

No matching items found.

Publication Details

Subtitle: Experiences as patients in the Swedish health care system

Author list: Danielson, Ella;Paulson, Margareta

Publication year: 2002

Start page: 87

End page: 95

Number of pages: 9

ISSN: 0309-2402


View additional information: View in Web of Science


BACKGROUND: Individuals with fibromyalgia (FM) frequently use health care services and experience only short-term improvements. They often feel that health care staff do not take them seriously. This increases the burden of living with the illness. AIM: To describe how men living with fibromyalgia-type pain experienced being patients in the Swedish health care system. METHOD: Narrative interviews with 14 men who fulfilled the American College of Rheumatology criteria for classification of fibromyalgia. Content analysis was used when analysing the data. RESULTS: The results are described using five themes. Theme I Feeling afraid of being looked upon as being a whiner highlights how the men endured a lot of pain before they sought health care, and how difficult it was to find a receptive listener. Theme 2 Feeling like a guinea pig shows that the mens feelings were twofold; they wanted examinations, even if these made them feel that they were being exposed to numerous treatments without any cure. Theme 3 Feeling hopeful describes the hope for a cure after having been referred to a specialist clinic. Theme 4 Feeling neglected illustrates being looked upon as an uninteresting patient and theme 5 Feeling no recovery illustrates the pain relief they gained, but not the actual cure. CONCLUSION: Men with FM type pain experienced a long wait before treatment at a specialist clinic as well as no continuity and follow-ups in primary care and general hospitals. Encounters with engaged and skilful staff promoted the mens well-being despite the fact that no cure was available. Not being respected led to a feeling of being neglected despite the care received. Thus, the men had to accept the fact that they would never recover.


No matching items found.


No matching items found.


No matching items found.